Hope for the New Heart Moms

Gut punch Hey new momma, welcome to the sorority that no one wanted to pledge. I’m sure hearing the news that your child has a heart defect hit you like…

Hot Weather Tips for Kids with CHD

Hot Weather and CHD Summer is upon us! Even though I’m not in school anymore (and my kids are not even school aged) there is still a magical element to…

What to Expect on Heart Surgery Day

Heart Surgery day The day that has been looming on your mind, in varying degrees of anticipation and anxiety, since the moment surgery was first mentioned. I felt terrified just…

Home From the Hospital with your Heart Baby

It’s your first day home from the hospital…now what? You made it. Your sweet, precious bundle survived open-heart surgery and you’re home from the hospital. Home. The place you’ve dreamed…

What to ask at your 20 week Ultrasound

The 20 week ultrasound, for many this is the much-anticipated “gender reveal” ultrasound. So exciting! But, what many women don’t know, is how important this anatomy ultrasound is in evaluating…

CHD and the Disney DAS Pass

When you think about Disney World – the heat, the lines, the crowds outnumbering the population size of small countries (not to mention the expense!) – it may all seem…