Heart Surgery day The day that has been looming on your mind, in varying degrees of anticipation and anxiety, since the moment surgery was first mentioned. I felt terrified just…
Preparing your Toddler for Heart Surgery
Last fall Calvin had his 3rd open heart surgery just shy of 4 years old. His first two surgeries were a totally different ball game during infancy. Back then, he…
Home From the Hospital with your Heart Baby
It’s your first day home from the hospital…now what? You made it. Your sweet, precious bundle survived open-heart surgery and you’re home from the hospital. Home. The place you’ve dreamed…
What to ask at your 20 week Ultrasound
The 20 week ultrasound, for many this is the much-anticipated “gender reveal” ultrasound. So exciting! But, what many women don’t know, is how important this anatomy ultrasound is in evaluating…
CHD and the Disney DAS Pass
When you think about Disney World – the heat, the lines, the crowds outnumbering the population size of small countries (not to mention the expense!) – it may all seem…
Making a Registry for Your Heart Baby: Part 2
Popular baby items you may not need Making a baby registry for your heart baby will be somewhat similar to buying items for any other baby. After all, every baby…
Making a Baby Registry for Your Heart Baby: Part 1
Making a baby registry – for me this was such a fun thing to do during pregnancy! I loved browsing through all the cute, tiny items and imagining how my…
Choosing a Hospital for your Child’s Heart Surgery
For most of us, choosing a hospital for our child’s heart surgery is the most important decision we’ve ever had to make. The stakes are high, you’re on a roller…
Taking Your Child with CHD to Disney World
Disney World: the mecca of family vacations, am I right? A rite of passage in both childhood and parenthood – as it will stretch you all to your limits! You…