No Small Task Preparing your child for their sibling’s heart surgery is no small task. First, let me preface this by saying we are relative newbies to this Heart Journey….
Does My Child with CHD Qualify for Make-a-Wish?
CHD and Make-a-Wish No parent wants to think their child with CHD qualifies for a Make-A-Wish trip. The very idea is terrifying. Trust me, I get it. When I saw…
Hot Weather Tips for Kids with CHD
Hot Weather and CHD Summer is upon us! Even though I’m not in school anymore (and my kids are not even school aged) there is still a magical element to…
Preparing your Toddler for Heart Surgery
Last fall Calvin had his 3rd open heart surgery just shy of 4 years old. His first two surgeries were a totally different ball game during infancy. Back then, he…
Home From the Hospital with your Heart Baby
It’s your first day home from the hospital…now what? You made it. Your sweet, precious bundle survived open-heart surgery and you’re home from the hospital. Home. The place you’ve dreamed…
What to ask at your 20 week Ultrasound
The 20 week ultrasound, for many this is the much-anticipated “gender reveal” ultrasound. So exciting! But, what many women don’t know, is how important this anatomy ultrasound is in evaluating…
CHD and the Disney DAS Pass
When you think about Disney World – the heat, the lines, the crowds outnumbering the population size of small countries (not to mention the expense!) – it may all seem…
Choosing a Hospital for your Child’s Heart Surgery
For most of us, choosing a hospital for our child’s heart surgery is the most important decision we’ve ever had to make. The stakes are high, you’re on a roller…
Questions to Ask Your Child’s Heart Surgeon
Interviewing a heart surgeon. Did you ever think that would be on your new parent to-do list?? Finding the right surgeon can be overwhelming and, honestly, somewhat intimidating. Here’s one…