February Frenzy Come late January there is a LOT of hype in the heart community about February – “Heart Month” and “CHD Awareness Week” are right around the corner! If…
Hospital Clothing for after Heart Surgery
What’s the best type of clothing for after heart surgery? I wondered the same thing before my son had his surgery. I wanted something comfortable for him that would also…
5 Charity Organizations You Need to Know About
The organization, Special Spaces, was originally featured when publishing this blog. Shortly after publication, the foundation announced a change in their mission to now solely serve children with cancer. Charity…
Hope for the New Heart Moms
Gut punch Hey new momma, welcome to the sorority that no one wanted to pledge. I’m sure hearing the news that your child has a heart defect hit you like…
Using a Pulse Ox at Home: Quick Tips for Accuracy
Are you checking your child’s pulse ox at home? Whether your doctor has recommended spot checks or you are just curious for your own knowledge, here’s a little info to…
Preparing Your Child for their Sibling’s Heart Surgery
No Small Task Preparing your child for their sibling’s heart surgery is no small task. First, let me preface this by saying we are relative newbies to this Heart Journey….
Does My Child with CHD Qualify for Make-a-Wish?
CHD and Make-a-Wish No parent wants to think their child with CHD qualifies for a Make-A-Wish trip. The very idea is terrifying. Trust me, I get it. When I saw…
Hot Weather Tips for Kids with CHD
Hot Weather and CHD Summer is upon us! Even though I’m not in school anymore (and my kids are not even school aged) there is still a magical element to…
What to Expect on Heart Surgery Day
Heart Surgery day The day that has been looming on your mind, in varying degrees of anticipation and anxiety, since the moment surgery was first mentioned. I felt terrified just…