On September 23rd, 2019 my six-year-old son, Kane, underwent his second open heart surgery at the Stollery Children’s Hospital in Edmonton, Alberta. Our Child Life Specialist played such an important…
Hospital Clothing for after Heart Surgery
What’s the best type of clothing for after heart surgery? I wondered the same thing before my son had his surgery. I wanted something comfortable for him that would also…
A Cure for CHD
Funding a Cure for CHD Cure? Yes, cure. Have we all lost our minds to think there could possibly be a cure for a congenital condition? Maybe, but hear me…
Hope for the New Heart Moms
Gut punch Hey new momma, welcome to the sorority that no one wanted to pledge. I’m sure hearing the news that your child has a heart defect hit you like…
What to Expect on Heart Surgery Day
Heart Surgery day The day that has been looming on your mind, in varying degrees of anticipation and anxiety, since the moment surgery was first mentioned. I felt terrified just…
Preparing your Toddler for Heart Surgery
Last fall Calvin had his 3rd open heart surgery just shy of 4 years old. His first two surgeries were a totally different ball game during infancy. Back then, he…
Making a Registry for Your Heart Baby: Part 2
Popular baby items you may not need Making a baby registry for your heart baby will be somewhat similar to buying items for any other baby. After all, every baby…
Choosing a Hospital for your Child’s Heart Surgery
For most of us, choosing a hospital for our child’s heart surgery is the most important decision we’ve ever had to make. The stakes are high, you’re on a roller…
Questions to Ask Your Child’s Heart Surgeon
Interviewing a heart surgeon. Did you ever think that would be on your new parent to-do list?? Finding the right surgeon can be overwhelming and, honestly, somewhat intimidating. Here’s one…